Friday, February 13, 2009

Seriously!!

Has it really been since the beginning of January since my last post?!?! Jeez, time flies! Nothing much has been going on over here. Just a few small things. First Caleb has learned how to play Disney games on the computer-so as I sit here and post I have this little boy saying "Mom, when your done it's my turn, okay?" So cute!

Caleb had a CF check up at Children's Hospital this past Tuesday. It went really well. Caleb has dropped pretty drastically in his weight since 90 days ago when we were at his last clinic visit. Weight loss is very common amongst CF patients because their bodies have a hard time absorbing their food intake. Hence, the reason for Caleb taking enzyme pills every time he puts something in his mouth. So we are adding 1200 additional calories per day to his intake. He will have 2 shakes per day that have over 600 calories in each. And just for the record, Caleb chose strawberry and vanilla flavored shakes. So far these shakes are pretty expensive, they are about $54 for every 12 days. But you do what you have to do. I will just work some extra hours every month, really not a big deal in the big scope of things. Caleb has also been unbelievably healthy the last 4-6 weeks. It has been really nice. His doctor had put him on an antibiotic a few months ago that Caleb takes twice per day. Caleb has been taking this antibiotic for the past 60 days and as of right now he will be taking the antibiotic indefinitely at this point. Caleb's doctor did inform me that some patients need the antibiotic every day and he has a few patients that have been on it for 15 years. So pro-biotics here we come! Caleb has only missed one day of preschool since September for being sick. I am so thankful with how well he has been doing.

Haley continues to be unpredictable. She climbs up on everything (the back of the couch, on top of the kitchen table), you cannot underestimate her. She says a few words, but not too much. However, she understands everything that you say to her. Oh and the sibling love has officially begun between Caleb and Haley. They fight ALL of the time!!!!! It's enough to make me want to pull my hair out sometimes.

Shane and I have been on a mission to lose some weight that attached itself to our poor bodies. To date Shane has lost a little over 24lbs and I have lost a little over 15lbs. We feel great and are very happy with the results we are seeing. So as we are cutting calories we are adding even more calories to Caleb's diet. This can be a hard balance to walk for sure.

Lastly, I have been listening to the 36 hours for kids that Alice 105.9 is doing as a fundraiser for Children's hospital in Denver. I listen to this broadcast every year. It makes you really stop and think about what others are going through and what an impact Children's Hospital has on their lives. I know I personally have a "love-hate" relationship with Children's. I love them because they have done amazing things for Caleb, and I hate them because we have to deal with this stupid disease called Cystic Fibrosis. I am sure anyone else who has been in these shoes can understand what I am trying to say. There was a story on the radio the other day about a little boy named Carter. There is a link on the right hand side of the blog that will take you to Carter's page. Please visit it and pray for this little boy and his amazing parents.

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