We wanted to let everyone know that on Thursday, April 9th, BJ's Brewhouse and Grill in Westminster, is having our 3rd Annual Cystic Fibrosis Foundation Proceeds night. This Fundraiser is in honor of Caleb and another little boy who suffers from CF, Scott. 15% of the proceeds will be given to the CF Foundation. If you have been before you know it is a lot of fun. Please make reservations if you are going to be dining between the hours of 5pm-10pm (the past two years we have been known to have a wait at the door). I will have a flier for everyone who goes to BJ's on 4/9/09. You must turn the flier in with your bill in order for us to get the credit.
Also, we are still looking for walkers to join us for the Great Strides walk for the Cystic Fibrosis. The walk is on May 16th @ 9:00am. We would love to have you all join us. To register to walk with us please visit: http://www.cff.org/Great_Strides/MelissaNolan and click on "Join My Team". I know this is a few months out still but we have a lot of things planned to raise funds this year and we would like to have an idea of who will be walking with us this year.
Thursday, February 26, 2009
Friday, February 13, 2009
Seriously!!
Has it really been since the beginning of January since my last post?!?! Jeez, time flies! Nothing much has been going on over here. Just a few small things. First Caleb has learned how to play Disney games on the computer-so as I sit here and post I have this little boy saying "Mom, when your done it's my turn, okay?" So cute!
Caleb had a CF check up at Children's Hospital this past Tuesday. It went really well. Caleb has dropped pretty drastically in his weight since 90 days ago when we were at his last clinic visit. Weight loss is very common amongst CF patients because their bodies have a hard time absorbing their food intake. Hence, the reason for Caleb taking enzyme pills every time he puts something in his mouth. So we are adding 1200 additional calories per day to his intake. He will have 2 shakes per day that have over 600 calories in each. And just for the record, Caleb chose strawberry and vanilla flavored shakes. So far these shakes are pretty expensive, they are about $54 for every 12 days. But you do what you have to do. I will just work some extra hours every month, really not a big deal in the big scope of things. Caleb has also been unbelievably healthy the last 4-6 weeks. It has been really nice. His doctor had put him on an antibiotic a few months ago that Caleb takes twice per day. Caleb has been taking this antibiotic for the past 60 days and as of right now he will be taking the antibiotic indefinitely at this point. Caleb's doctor did inform me that some patients need the antibiotic every day and he has a few patients that have been on it for 15 years. So pro-biotics here we come! Caleb has only missed one day of preschool since September for being sick. I am so thankful with how well he has been doing.
Haley continues to be unpredictable. She climbs up on everything (the back of the couch, on top of the kitchen table), you cannot underestimate her. She says a few words, but not too much. However, she understands everything that you say to her. Oh and the sibling love has officially begun between Caleb and Haley. They fight ALL of the time!!!!! It's enough to make me want to pull my hair out sometimes.
Shane and I have been on a mission to lose some weight that attached itself to our poor bodies. To date Shane has lost a little over 24lbs and I have lost a little over 15lbs. We feel great and are very happy with the results we are seeing. So as we are cutting calories we are adding even more calories to Caleb's diet. This can be a hard balance to walk for sure.
Lastly, I have been listening to the 36 hours for kids that Alice 105.9 is doing as a fundraiser for Children's hospital in Denver. I listen to this broadcast every year. It makes you really stop and think about what others are going through and what an impact Children's Hospital has on their lives. I know I personally have a "love-hate" relationship with Children's. I love them because they have done amazing things for Caleb, and I hate them because we have to deal with this stupid disease called Cystic Fibrosis. I am sure anyone else who has been in these shoes can understand what I am trying to say. There was a story on the radio the other day about a little boy named Carter. There is a link on the right hand side of the blog that will take you to Carter's page. Please visit it and pray for this little boy and his amazing parents.
Caleb had a CF check up at Children's Hospital this past Tuesday. It went really well. Caleb has dropped pretty drastically in his weight since 90 days ago when we were at his last clinic visit. Weight loss is very common amongst CF patients because their bodies have a hard time absorbing their food intake. Hence, the reason for Caleb taking enzyme pills every time he puts something in his mouth. So we are adding 1200 additional calories per day to his intake. He will have 2 shakes per day that have over 600 calories in each. And just for the record, Caleb chose strawberry and vanilla flavored shakes. So far these shakes are pretty expensive, they are about $54 for every 12 days. But you do what you have to do. I will just work some extra hours every month, really not a big deal in the big scope of things. Caleb has also been unbelievably healthy the last 4-6 weeks. It has been really nice. His doctor had put him on an antibiotic a few months ago that Caleb takes twice per day. Caleb has been taking this antibiotic for the past 60 days and as of right now he will be taking the antibiotic indefinitely at this point. Caleb's doctor did inform me that some patients need the antibiotic every day and he has a few patients that have been on it for 15 years. So pro-biotics here we come! Caleb has only missed one day of preschool since September for being sick. I am so thankful with how well he has been doing.
Haley continues to be unpredictable. She climbs up on everything (the back of the couch, on top of the kitchen table), you cannot underestimate her. She says a few words, but not too much. However, she understands everything that you say to her. Oh and the sibling love has officially begun between Caleb and Haley. They fight ALL of the time!!!!! It's enough to make me want to pull my hair out sometimes.
Shane and I have been on a mission to lose some weight that attached itself to our poor bodies. To date Shane has lost a little over 24lbs and I have lost a little over 15lbs. We feel great and are very happy with the results we are seeing. So as we are cutting calories we are adding even more calories to Caleb's diet. This can be a hard balance to walk for sure.
Lastly, I have been listening to the 36 hours for kids that Alice 105.9 is doing as a fundraiser for Children's hospital in Denver. I listen to this broadcast every year. It makes you really stop and think about what others are going through and what an impact Children's Hospital has on their lives. I know I personally have a "love-hate" relationship with Children's. I love them because they have done amazing things for Caleb, and I hate them because we have to deal with this stupid disease called Cystic Fibrosis. I am sure anyone else who has been in these shoes can understand what I am trying to say. There was a story on the radio the other day about a little boy named Carter. There is a link on the right hand side of the blog that will take you to Carter's page. Please visit it and pray for this little boy and his amazing parents.
Thursday, January 15, 2009
Loving it...
Saturday, January 3, 2009
Happy New Year!
Happy New Year to everyone. We always have a very laid back New Year's Eve. We just hang out at home and fondue for several hours while watching some great new releases...though this year we weren't so great on our pics. We started off with Mama Mia-about 5 minutes into it Shane gave me the "you have got to be kidding look" and we turned it off (I think I will enjoy watching it on my own at a later time). Then we watched The Women. HAHAHA!! There was not one single male in the whole movie. Shane watched it but could not believe what our luck had been. I didn't care for that movie too much either. Earlier New Year's Eve we took the kids to the museum to see the Dinosaur exhibit and see Dinosaurs Alive at the Imax. The kids were great and it was a lot of fun. It had been like 13 years since I had been to the museum (I think I just aged myself).
New Year's Day was also low key. I worked for a few hours (can't pass up that Holiday time) and we just relaxed the rest of the day.
No resolutions here. Except that 2009 is all mine. It seems like for the past couple of years if I wasn't pregnant, I was breastfeeding, or planning on being pregnant...and in 2009 there is not going to be ANY of that. I love having my two kids don't get me wrong. They are the most amazing gifts God has ever blessed Shane and I with. This year I am just going to spend a little time each week on me-just plain out taking care of myself.
New Year's Day was also low key. I worked for a few hours (can't pass up that Holiday time) and we just relaxed the rest of the day.
No resolutions here. Except that 2009 is all mine. It seems like for the past couple of years if I wasn't pregnant, I was breastfeeding, or planning on being pregnant...and in 2009 there is not going to be ANY of that. I love having my two kids don't get me wrong. They are the most amazing gifts God has ever blessed Shane and I with. This year I am just going to spend a little time each week on me-just plain out taking care of myself.
Tuesday, December 30, 2008
A Merry Christmas it was indeed!
This Christmas was my favorite thus far for sure! Caleb was so full of excitement...I don't think his feet hit the floor for two days. It was so much fun to watch him be so excited for Santa but also know that it was Jesus' birthday. Caleb wanted the Imaginext Spike the Ultra Dinosaur for Christmas so badly. It nearly killed me to keep him in the waiting until Christmas morning. Haley follows everything that Caleb does. So with that came excitement within her as well. Last Christmas my little girl was just shy of 8 weeks old at Christmas...she just slept in her swing or a Grandma's arms the whole time. This year was so much different. She got a kitchen set from Santa and she immediately loved playing with it. One of her very favorite toys however, is her baby and the baby stroller.
Caleb was so tired Christmas evening...he had a very difficult time finishing his last treatment for the day.
Caleb was so tired Christmas evening...he had a very difficult time finishing his last treatment for the day.Tuesday, December 23, 2008
Give and you shall recieve...
The other day Shane asked me if he could take some of the $20.00 cash that I had in my wallet. He told me that some guys from work (including him) had "adopted" a family who recently lost the Dad due to a major heart attack. The family was losing their home to foreclosure (because he was the breadwinner) and the family car was also being reposed. Shane said he was going to use some of it to put into the pot of cash to purchase last minute items for the family. I told him to just put the whole $20 towards the family. Both Shane and I knew that $20 was a lot for us. However, we have so much...we could sacrifice $20 for a family who had lost so much, their Dad (and husband) and their home. Later that day I checked the mail and there was a letter from Children's Hospital thanking me for filing out a survey for their Shine Newspaper (I do not remember doing this at all) and with the letter was a $100.00 gift card to King Soopers. I was amazed! I almost felt guilty holding this gift card. I never imagined or thought God would bless us with something 5 folds of what we gave earlier that morning.
Another testimony of God's amazing heart.
Another testimony of God's amazing heart.
Subscribe to:
Posts (Atom)






