Sunday, April 27, 2008

A 90 day check up for Caleb

On Friday we took Caleb in for his 90 day check up at the CF clinic at Children's Hospital. Good news and bad news. The good news...Caleb continues to be in the 75th percentiles for height and weight. Caleb is so sweet. He told Dr. Accurso that he loves him. I am sure Dr. Accurso's day was a little bit brighter after that :) Now for the bad news...Caleb has been struggling with a cough for the past 6-8 weeks. When the cough first came on we started him on antibiotics. Within two weeks the cough was gone. Well he has been off of the antibiotics now for about 2 weeks and the cough is back. Coughs in CF patients are huge red flags. Especially for Caleb because Caleb had cultured pseudomonas when he was about 8 weeks old. Pseudomonas is a very nasty bacteria that a lot CF patients will culture. There is very little studies that show that once someone has psuedomonas that it ever leaves their body. It is also an extremely aggressive bacteria (hence why it never leaves the body). Dr. Accurso is not sure if this is pseudomonas or not-but because Caleb has cultured it, Dr. Accurso is very aggressive in Caleb's treatment plan. So here is the plan: 30 days of antibiotics 2 times per day, 1 week of doubling up on the breathing treatments, and if by Friday the 2nd of May the cough is not gone then we will do a steroid boost for 5 days. If the steroids do not seem to calm down the cough then if might be tune up time. A tune up is a 7-14 day inpatient at Children's. Please Please Please pray that we do not have to do the tune up. Caleb has not had to have a tune up since July 2006. I know it is part of the disease-but I don't know how we would do it. Most importantly, how do I leave Haley for that long of time period-with who would I leave her with? Everyone else has lives too (work schedules etc) and financially how would we do it? I know that God never hands you more than what you can take on. Hopefully this is more than what we can take right now.

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